I became hysterical and when my husband got home I fell down on the floor and just begged him to kill me because I couldn’t do my job, I couldn’t be a wife, I couldn’t take care of my child, and there was no reason for me to go on. – Jane (interviewee)
The doctors told me it was all in my head, that I really couldn't be having any pain because I was no longer testing positive for a urinary tract infection. I would pray before going to see each new doctor. I'd walk in the office thinking, "Please. I don't care if I have cancer at this point. Just tell me it's something so I can learn to deal with it or take steps to make it better." – Kat (interviewee)
I was diagnosed with vulvodynia when I was 20, but I know I had it much longer than that. My family physician had no idea that vulvodynia was a condition and even went so far as to tell me that the pain was all in my head. – A patient of Dr. Echenberg
When the pain first started, I silently continued intercourse. When the pain was severe, I just had to stop. We would try at times, but I couldn't stand the pain. Eventually, my husband quit going to bed with me. He would stay up at night watching porn and satisfying his needs. We were married only two years when the pain started. – Survey Respondent

 

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Click here for 90 minute interview with Dr. Echenberg on Persistent Genital Arousal Dysfunction (PGAD) and how it relates to all of chronic pelvic pain - April 24, 2014

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